Trey Gray.....Musician, Drummer.....HD Patient
Typically when you come and check out my blog you read about country music news or something I find online that I find funny. However, over the last month or so I have finally come out of my shell to embrace something I've kept to myself for many years, something I don't typically talk about unless asked.
18 years ago my dad was diagnosed with Huntington's Disease which is a hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently; there is no treatment or cure. HD slowly diminishes the affected individual’s ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care.
More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease; therefore at least 200,000 Americans are at risk of developing the disease.
Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD. The first therapy approved by the FDA specifically for Huntington’s disease (HD) was released in 2007. Several new potential treatments are moving through Phase 3 Clinical Trials at this time. (Source)
I've met some phenomenal people over the last month or so who are leading the fight to find a cure for this devastating disease. I'm thankful that I had many good years with my dad being able to enjoy things that fathers and sons should do. He got to coach my basketball and baseball teams, we got to go bowling, fishing, take random road trips and just have quality father/son time. But, as I've gotten older this horrible disease has robbed me of my father and things that I only wish he was able to help me with today, thankfully, I still have him but this disease is so advanced we aren't able to do the things together that we should.
My mother is my hero; she makes sure my dad has the best care possible. The worst part is the thought that she now has the worry that both me and my brother carry a 50% chance of being diagnosed with Huntington's Disease. This is where I hope raising the awareness of this disease can lead to finding more treatments and hopefully a cure.
I was recently made aware of Trey Gray who has been diagnosed with HD. Trey is a country music star! He has spent many years on the road with Faith Hill, Jewel and most recently Brooks & Dunn. He isn't letting this disease get him down and he is doing his best to raise awareness for this disease. Check out this video I found about Trey's fight.
I hope that you will do some research on this horrific disease and if you see fit donate a few dollars to help the fight.
Huntington's Disease Society of America.